Research Data Sharing Agreement

For access to restricted, de-identified data for approved research use

11 May 2026

This page provides the BNR Research Data Sharing Agreement for researchers and research teams requesting access to restricted, de-identified registry data.

Approval is not automatic. Each request is reviewed in relation to the purpose of the work, the sensitivity of the data, the proposed safeguards, and the public health value of the request.

NoteSubmitting this agreement

Complete the agreement, then use your browser’s Print option to save the completed page as a PDF.

Email the completed PDF to the BNR team using the agreed submission route. This website does not store or submit the information entered on this page.

ImportantWe do not store your data

This is not an online form. Nothing you type is submitted to the website or stored by the BNR Information Hub.

NoteHow to complete this agreement

To use this form, complete all fields, then print or save the page as a PDF for signature and submission.

1. Purpose of this agreement

This agreement allows an approved researcher or research team to access restricted, de-identified data from the Barbados National Registry for Chronic Non-Communicable Disease (BNR).

It supports the use of data for public health and academic research while ensuring compliance with the Barbados Data Protection Act (2019) and BNR’s duty of confidentiality.

2. Parties

Data Custodian:
The Barbados National Registry for Chronic Non-Communicable Disease (BNR)
George Alleyne Chronic Disease Research Centre
The University of the West Indies, Cave Hill Campus

Data User / Researcher

3. Description of data

Data requested

Type of data

Restricted, de-identified dataset

Disease area(s)

All direct identifiers, including names, addresses, and ID numbers, have been removed.

Although the data are de-identified, users must handle them with care to prevent any risk of re-identification.

4. Agreed purpose

The data are supplied only for the approved research project listed below.

Approved research project

The data may also be used for closely related analyses, peer-review, or follow-up publications linked to this project, provided that the BNR is notified.

5. Conditions of use

The Researcher agrees to:

  1. Keep the data secure and limit access to authorised project team members.
  2. Not attempt to identify individuals or link BNR data to other datasets without BNR approval.
  3. Use the data only for research that has ethical or institutional approval.
  4. Not share the data with anyone outside the approved research team.
  5. Retain the data only while the research, analysis, and related publications are active, then either archive them securely within the institution or delete them under institutional policy.
  6. Acknowledge the BNR and the Ministry of Health and Wellness in all outputs.
  7. Share with the BNR a copy or citation of any reports or publications arising from this work.
  8. Report any suspected data breach or misuse immediately to the BNR Technical Lead.

6. Data retention and security

The Researcher agrees that the data will be stored and managed as follows:

  • Store data on secure, password-protected and encrypted institutional systems.
  • Institutional or cloud storage is acceptable if compliant with recognised standards, such as ISO 27001 or equivalent.
  • Do not store data on personal laptops or unencrypted media.
  • Data may be archived for reproducibility and verification within the research institution, under the same or higher level of security.
Secure storage location

7. Governance and oversight

All data sharing is subject to:

  • approval by the BNR Technical Lead, and
  • ethical approval by a recognised Research Ethics Committee, if required.

The BNR may withdraw access if these terms are breached or if continuing use no longer meets the public interest test under the Barbados Data Protection Act (2019).

BNR review and approval

8. Signatures

For the Barbados National Registry

Data Custodian approval

For the Researcher

Data User agreement

Last updated: May 2026

Before submitting

Before submitting the completed agreement, please check that:

  • all researcher and institution details are complete;
  • the project title and purpose are clearly stated;
  • the disease area, period covered, and requested format are specified;
  • ethics approval details are included, where applicable;
  • storage and security arrangements are suitable for restricted, de-identified data;
  • the agreement has been signed and dated.

Questions about data access

Requests for access to restricted BNR data are reviewed by the BNR team.

The BNR may request further information before approving a data release.

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